“Rainbow Trust supports families who have a child aged 0-18 years with a life threatening or terminal illness and need the bespoke support we offer. Our Family Support Workers provide a life line to these families and children. We support the whole family including parents, carers, the unwell child, brothers, sisters and grandparents. They bring support and help to families who so desperately need it at home, in hospital and in the community. Any family can receive support from the moment of their child or young person’s diagnosis.
We are not a helpline, or a website. Our Family Support Workers are real human being who sticks with them every step of the way. Who’s there for them whether that means holding their hand in a hospital appointment, interpreting medical jargon or doing the food shop.
To the family of a seriously ill child, time is everything. Not just for tests, and treatment, and care. But for precious everyday stuff, so that even in the shadow of serious illness, a family can still be a family.”